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Service Programs
Adult Down Syndrome Program (ADSP)
An interdisciplinary clinical program serving adolescents and adults with Down syndrome
Scheduling: 678-595-4854
Clinic time: monthly on Fridays
ADSP Brochure PDF
This Interdisciplinary Clinical Program serves the southeast and specializes in adolescents and adults with Down syndrome. The ADSP is a specialty program providing developmental assessment, coordination of healthcare, resources and family support and long range planning. Our team is comprised of a developmental physician, clinical nurse/social worker, registered dietician and a family counselor. Our services include the comprehensive visit and a follow up visit, if needed. We provide a comprehensive written report and availability to follow up contact to any of our team members. The ADSP is supported by Down Syndrome Association of Atlanta. The program also serves as the clinical base for research activities on individuals with Down syndrome and the Caregiver Support Group workshop.
Update on Mulitcenter Trial on senior adults with Down syndrome.
As of April 2010, ISDD completed all clinical visits for the Multicenter Trial on senior adults with Down syndrome. The research study is now in the data analysis phase of the project. In January 2009 an Investigators Meeting was held to provide update at all trial sites and to discuss future research endeavors.
List of all research sites
Photo at Investigators Meeting
Project GRANDD
Grandparents Raising and Nurturing Dependents with Disabilities
For information: 678-595-4854
This program provides intensive supports to grandparents who are the caregivers of grandchildren with disabilities, chronic conditions, behavioral or learning disabilities. It is supported by the Atlanta Regional Commission, Area Agency on Aging. Our monthly group meetings are held at the Helene S. Mills Senior Adult Multipurpose Center of the Fulton County Human Services Department, Office on Aging. These group meetings are typically held on Wednesday mornings from 10:00 to noon. The first hour of each meeting is set aside for group counseling provided by a licensed family therapist. This is a time for grandparents to share their concerns and hopes with each other. The second hour of each meeting is educational and will address the specific needs grandparents have raising their grandchildren with special needs. We also provide individual counseling to grandparents in need. We remain the only program in Georgia that specializes in providing supports to grandparent and relative caregivers of grandchildren with disabilities.
Project GRANDD Brochure PDF
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Southeast Pediatric Environmental Health Specialty Unit at Emory University (PEHSU)
ISDD partners with Emory University Department of Pediatrics to provide resource information, outreach education and clinical referrals to the southeast. PEHSU focuses on the environmental health and safety of children. The Southeast Pediatric Environmental Health Specialty Unit is part of a network located throughout the U.S., Canada, and Mexico, www.pehsu.net. The PEHSU units were created to ensure that children and communities have access to, usually at no cost, special medical knowledge and resources for children faced with a health risk due to a natural or human-made environmental hazard. The SE PEHSU is dedicated to increasing environmental medicine knowledge among healthcare professionals around children’s environmental health by providing consultation and training. We provide information and resources to school and community groups to help increase public understanding of children's environmental health. The Southeast PEHSU team consists of Robert Geller, MD (toxicologist), I. Leslie Rubin, MD (developmental pediatrician), Michele Marcus, PhD, MPH (epidemiologist), Maeve Howett, PhD, CNP-Ped, IBCLC (nurse) and Janice Nodvin (educator and project administrator).
(877) 33 PEHSU or (877) 337-3478 www.sph.emory.edu/PEHSU |
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Clinical Collaborations
Children’s Healthcare of Atlanta - Hughes Spalding Children’s Hospital:
35 Jesse Hill Jr. Drive SE
Atlanta, GA 30303
Developmental Clinic
Scheduling: 404-785-7109
Clinic time: 4th Wednesday of every month
This diagnostic clinic serve children with all forms of developmental disabilities and/or delays.. This clinic accepts private insurance as well as all forms of Medicaid and is run through Dr. Rubin ’s affiliation with Morehouse School of Medicine, Department of Pediatrics. Please note that for all children who have Medicaid or HMO/POS insurances a referral is required to make an appointment. If the patient has a PPO or POS insurance plan, a physician’s referral should be faxed with demographic information. Once the information is received and there is an opening, the patient will receive a call to schedule the appointment.
Referrals can be faxed for this clinic to 404-785-7112, attention ShaJuanna Wayne.
Interdisciplinary Autism Clinic
Scheduling: 404-785-7109
Clinic time: 1st and 3rd Wednesday of every month
The Autism Clinic sees children who already have a diagnosis along the autism spectrum of conditions. At this clinic the children are seen and further evaluated by an interdisciplinary team of specialists. This clinic accepts private insurance and Medicaid and is run through Dr. Rubin ’s affiliation with Morehouse School of Medicine, Department of Pediatrics. Please note that for all children who have Medicaid or HMO/POS insurances a referral is required to make an appointment.
Referrals can be faxed for this clinic to 404-785-9931.
Interdisciplinary Cerebral Palsy Clinic
Scheduling: 404-785-7109
Clinic time: 2nd Wednesday of every month
The Cerebral Palsy Clinic sees children who already have a diagnosis of Cerebral Palsy. At this clinic the children are seen and further evaluated by an interdisciplinary team of specialists and therapists. This clinic accepts private insurance and Medicaid and is run through Dr. Rubin’s affiliation with Morehouse School of Medicine, Department of Pediatrics. Please note that for all children who have Medicaid or HMO/POS insurances a referral is required to make an appointment.
Referrals can be faxed for this clinic to 404-785-7112, attention ShaJuanna Wayne.
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Developmental Pediatric Specialists:
776 Windsor Parkway NE
Atlanta, GA 30342
404-303-7247 www.dpsatlanta.org
Windsor Parkway Clinic
Scheduling: 404-303-7247
Clinic time: Tuesday and Thursday only
This diagnostic clinic evaluates children and adults with developmental disabilities and/or delays. This clinic is not in network and does not file with any insurance and does not accept Medicaid, but all forms are provided to the families so that they can file their claims themselves for any possible reimbursements.
The TEAM Centers, Inc.:
Chattanooga Clinic
Scheduling: 423-622-0500
Clinic time: Monday
This clinic sees patients with all forms of developmental disabilities throughout their life span. A team approach is utilized with the evaluation which includes medical, psychological and therapeutic. This clinic does file private insurance and Tenncare. |
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Reserach Program
Break The Cycle Programs
The Break the Cycle projects support student driven research on children who grow up in environmental circumstances of social and economic disadvantage and therefore are at greater risk for adverse health and developmental outcomes. The Break the Cycle projects began in 2005; all have yielded exciting papers from local and regional universities representing students from various departments. To date we have partnered with thirteen different universities in four states and have supported research for 36 students. Students from the previous Break the Cycle projects have had their research papers published in the International Journal of Child and Adolescent Health. The 2010-2011 cycle will be the sixth cycle for this project. Below, review the Break the Cycle monographs.
To view the Monograph of Break the CycleII
To view the Monograph of Break the CycleIII
To view the Monograph of Break the CycleIV
To view the Monograph of Break the CycleV
Multi-Center Study for Senior Adults with Down syndrome and Alzheimer’s Disease
ISDD was one of the sites for a multicenter Vitamin E trial in aging persons with Down syndrome, now in the data analysis phase. This was the first large-scale treatment study of Alzheimer disease in persons with Down syndrome. This protocol is sponsored by the National Institutes of Health. (Concluded April 2010)
Learn more about the Vitamin E trial
Periodontitis in Individuals with Down Syndrome
In collaboration with the Medical College of Georgia School of Dentistry, Dept. of Periodontics, ISDD is studying periodontal disease and Down syndrome. Completed
Research Population Survey on children of Mary Hall Freedom House
ISDD is working with the Mary Hall Freedom House to better understand the comprehensive needs of the children whose mothers are in the program to break the cycle of addiction and live drug free.
This study led to a Healthy Tomorrows Partnership grant called Healthcare Without Walls, which was approved and began March 2010.
www.maryhallfreedomhouse.org
Healthcare Without Walls: A Medical Home for Homeless Children
The Institute for the Study of Disadvantage and Disability (ISDD) was recently awarded a five-year, $250,000 Healthy Tomorrows grant by the Maternal and Child Health Bureau of HRSA and the American Academy of Pediatrics. This is the first Healthy Tomorrows grant awarded to Georgia in 17 years. ISDD, a private not-for-profit institute dedicated to Break the Cycle of Disadvantage and Disability for vulnerable children, will establish Healthcare Without Walls: A Medical Home for Homeless Children, a collaborative and comprehensive community-based program to address the health care needs of this group of vulnerable children. ISDD will work in collaboration with Mary Hall Freedom House, a successful and growing behavioral health program for homeless women, the Department of Pediatrics at the Morehouse School of Medicine, a Historically Black University dedicated to providing healthcare to children in the community, and Children’s Healthcare of Atlanta, the largest provider of healthcare for children in Georgia. |
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Education, Training and Outreach
– Morehouse School of Medicine Medical Student & Pediatric Residency Programs
– Emory University School of Medicine, Southeast Pediatrics and Environmental Health Specialty Unit/ PEHSU. See PEHSU Brochure PDF
– Local, Regional, National and International Presentations and Conferences
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