Who We Are :

 

Leslie Rubin, MD President and Founder

Leslie Rubin MD is President and Founder of the Institute for the Study of Disadvantage and Disability, Visiting Scholar in the Department of Pediatrics at Morehouse School of Medicine in Atlanta, Georgia, Medical Director of TEAM Centers in Chattanooga Tennessee; and Co-director of the Southeast Pediatric Environmental Health Specialty Unit in the Department of Pediatrics at the Emory University School of Medicine in Atlanta, Georgia.

Dr. Rubin is originally from South Africa where he trained in Pediatrics and came to the USA to specialize in Neonatology and then in Developmental Pediatrics. He was initially at the Hospitals of the Case Western Reserve University in Cleveland Ohio and then he moved to The Children’s Hospital in Boston and the Harvard Medical School where he spent 14 years. At the Children’s Hospital in Boston, he worked with Allen Crocker in the Developmental Evaluation Center, a University Affiliated Program where they were involved in organizing the provision of health care and related services for children and adults with developmental disabilities and their families as well as in the training of health care professionals in this field.

In July 1994 he moved to Atlanta, Georgia as Director of Developmental Pediatrics at Emory University School of Medicine and as Medical Director of the Marcus Institute. At Emory, he developed Residency and Fellowship programs in Developmental Pediatrics and helped to establish Project DOCC, a project that exposes pediatric residents to families who have children with developmental disabilities and other chronic medical problems. At the Hughes Spalding Children’s Hospital he actively participated in the development of clinical programs in Cerebral Palsy, Autism, Children with Sickle Cell Disease who have had strokes, and general child development clinics.

Since 1998 he has been involved with the Southeast Pediatric Environmental Health Specialty Unit in the Department of Pediatrics Emory, where he has integrated his understanding of Developmental Disabilities and applied this to populations of children who had been exposed to adverse environmental circumstances particularly in the city of Anniston Alabama, where he helped form the Vision 2020, a citizens action group focused on promoting optimal health and development for the children of Anniston. He is currently working internationally in Chile to establish a program emphasizing pediatric environmental health.

Also in 1998 he became involved with the TEAM Centers in Chattanooga, Tennessee, a program dedicated to providing interdisciplinary, comprehensive, and coordinated community based services for children and adults with developmental disabilities, where he subsequently became Medical Director and also Medical Director the TN-START program, a state funded program to provide crisis intervention and prevention services for adults with developmental disabilities who have co-occurring behavioral and mental health needs.

In May, 2004, Dr. Rubin founded the Institute for the Study of Disadvantage and Disability, dedicate to improving the awareness and understanding of the relationship between social and economic disadvantage and disabilities in children and adults.

In September 2004 he left Emory University and Marcus Institute and joined the Department of Pediatrics at the Morehouse School of Medicine. He is the Medical Director of the Adult Down Syndrome Program, the Principal Investigator of the Multicenter Vitamin E Study on senior adults with Down syndrome and heads our Break the Cycle II project. His vision and direction is provided to all programs of ISDD. He is currently on a number of local, regional, national and international committees and projects that address the needs of children and adults with Developmental Disabilities and has co-authored and co-edited a number of publications and books in this area. The most recent being: (See Resources)

I Leslie Rubin, Allen C. Crocker: Delivery of Medical Care for Children and Adults with Developmental Disabilities. 2nd Edition. Paul Brookes, 2006
Howard Frumkin, Robert Geller, I Leslie Rubin with Janice Nodvin: Safe and Healthy School Environments. Oxford University Press, 2006

Contact:
776 Windsor Parkway
Atlanta, GA 30342
Ph: 404-303 7247
Fx: 404-303-7837
Email: lrubi01@emory.edu


Board of Directors :

Peter S. Fanning, Ed.D.

Dr. Fanning has been an integral part of the Marcus Institute for Development and Learning since its inception in 1992. From 1992 to 1998 he served as the CEO and President of the Marcus Institute, aka Marcus Center and Marcus Developmental Resource Center. With the merger of the Marcus Institute and Kennedy Krieger Institute in 1998 until 2003 he served as President of the Marcus Institute and Senior Vice President of the Kennedy Krieger Institute. In 2003, Dr. Fanning assumed the position of Executive Vice President and Chief Administrative Officer of the Marcus Institute while maintaining his position with the Kennedy Krieger Institute as part of a succession plan leading to his eventual retirement. He has overseen the growth of the Marcus Institute from a small organization of several staff housed in a trailer outside the Ronald McDonald outpatient clinics of the Department of Pediatrics, Emory School of Medicine, providing limited diagnostic and information services to children and youth, through its expansion of those services statewide and the development of a separate corporation designed to provide community based adult services. In 1998, Dr. Fanning also oversaw and guided the Marcus Institute through a merger with the Kennedy Krieger Institute of Baltimore, making the Marcus Institute a completely unique service and training entity designed to provide state-of-the-art services for persons with developmental disabilities and severe and challenging behavior problems.

Prior to the Marcus Institute, Dr. Fanning was Vice President of Clinical, Community and Education Programs at Kennedy Krieger Institute, having come there from his position as Executive Director of Special Education for the state of Colorado. Dr. Fanning has been a teacher of regular class students as well as a teacher of children and adults with mental retardation. He has been a building principal, local district and state director of special education.

Dr. Fanning received his Bachelors Degree in English from the College of Education at Boston College; a Masters Degree in Education from the Department of Exceptional Student Education at the State College of New York at Buffalo; and a Doctoral Degree in Administration and Special Education from the University of Arizona. He did a post-doctoral internship at the Council of Chief State School Officers in Washington, DC where he was part of the legislative liaison department responsible for representing states interests in P.L.94-142, the predecessor to IDEA.

Dr. Fanning has been active in advocacy efforts building partnerships between parents and the public and private sectors. He started the first statewide parent-to-parent network in Colorado and has extensive experience in building service and advocacy networks. Dr. Fanning has received many awards and is an often-asked speaker at conferences and meetings on issues that impact upon persons with disabilities. Dr. Fanning’s publications include articles on systems development, relationships between parents and schools, organizing service systems, the roles of other professionals such as physicians and lawyers in the education of children with special needs and research on effectiveness of select special education programs.

Dr. Fanning has recently retired from the Marcus Institute.

Contact:
Email: Peter.Fanning@marcus.org


Kevin S. King Vice President and Treasurer

Mr. King serves as Vice-President and Treasurer of The Institute for the Study of Disadvantage and Disability, Inc. He helped form ISDD as a non-profit with Dr. Leslie Rubin. He has been a practicing attorney lawyer in Georgia since 1972, primarily in the areas of corporate law, business transactions, and financial and family planning. His has expertise in organizing, representing, and advising non-profits, and in matters relating to their tax exempt status with the IRS.

He is currently employed as Director of Administration of the Greenfield Hebrew Academy, 5200 Northland Drive, Atlanta, Georgia.

Since 1998 Mr. King has served on the board of Fidelity Southern Corporation (NASDAQ - LION), a bank holding company whose shares are publicly traded on the NASDAQ, and on the board of the Bank it owns, Fidelity Bank, located in Atlanta, Georgia.

Mr. King helped organize Project Vision, Inc. in 1991 and has served on its board and in other capacities since that time. Project Vision, Inc. is an Atlanta based 501(c)(3) charity whose mission is to improve the eye care of Israelis and Jews around the world. In February, 2005, he became its Chief Operating Officer.

Contact:
The Terrace
190 Northglenn Court
Atlanta, GA 30342
Ph: 404-240-2020
Fx: 404-240-2022
Cell: 404-307-3427
Email: kking@kevinsking.com


June Phillips

June Phillips is the Executive Director of TEAM Centers, Inc. in Chattanooga, Tennessee where she oversees numerous clinical programs for children and adults with disabilities and several large operational budgets. Ms. Phillips has over 20 years of experience with board development, project development and working with various payer sources. Along with this passion, she is an ardent supporter of Dr. Rubin’s vision and practices.

Contact:
600 N. Holtzclaw Ave.
Chattanooga, Tennessee
(Ph) 423-622-0500 ext. 231
(Pgr) 888-488-5301
Email: jphillips@teamsupports.org


Cheryl Rhodes, Secretary

Cheryl Rhodes, MS, LMFT serves as Secretary of ISDD. She is Associate Director of Project SCEIs (Skilled Credentialed Early Interventionists) at Georgia State University in the department of Educational Psychology
and Special Education. Project SCEIs coordinates training for personnel in Babies' Can't Wait (BCW), Georgia's early intervention program for young children with disabilities and the BCW Parent Educator program.

She is the Training and Counseling Coordinator for Project GRANDD, steering committee member for the Georgia Parent Leadership Coalition, Sibling Support Group leader,  and chair of the Family Consortium Committee of the Division for Early Childhood (DEC) of the Council for Exceptional Children. She is a licensed Marriage and Family therapist with over 30 years of experience as a trainer, therapist, and consultant. 

She is the mother of three children ages 19, 21, and 24.  Her younger daughter has significant developmental disabilities and is currently in a high school transition program.  She has an interest in understanding sibling relationships, and considers her children to be her greatest teachers. She is co-author of the book, Brothers and Sisters: A special part of exceptional families, published in 2006 by Brookes Publishing Co. (See Resources)

Contact:
Georgia State University Educational Psychology and Special Education
PO Box 3979
Atlanta GA 30302-3979
Ph: 404-651-0162
Fx: 404-651-4901
Email: specar@langate.gsu.edu


Joshua Shorr

Josh has been with Baird since 2002 and has more than eleven years of experience in working with his clients’ complex planning needs. His background includes his time as a Certified Financial Manager at one of the largest brokerage houses in the world as well as his estate planning practice as an attorney at a major international law firm.

A graduate of Pace University School of Law, Josh went on to receive his Certified Financial Planner accreditation form Oglethorpe University, where he currently is an instructor for their top rated CFP program. In addition, Josh has graduated from the Senior Investment Counsel Program at the University of Chicago, a specialized investment management training program. Josh is a published author and has presented to a wide array of audiences discussing the concepts and techniques used in his planning practice.

A resident of the Atlanta area for more than nine years, Josh is an involved member of his community, he is the Founder and a Co-Chair of the Institute for The Study of Disadvantage and Disability’s Annual Golf Tournament, a long time member of the Professional Advisory Committee for The Jewish Federation of Greater Atlanta’s Endowment and is one of the first five Certified Financial Planners selected to be part of the prestigious Atlanta Estate Planning Council. In addition, Josh is part of late U.S. Senator Paul Coverdell’s Leadership Training Institute and has represented Georgia in the United State Senate’s Leadership Summit in Washington, D.C., wherein he was briefed by U.S. Senators from both sides of the aisle, Secretary Elaine Chao of the Department of Labor and Carly Fiorina, former President and CEO of Hewlett Packard, on the most important business, taxation and planning issues currently facing our Nation. Lastly, In 2004, Josh was selected as part of a 7 member U.S. delegation, representing the 13 Southeastern States, in a diplomatic mission to the Middle East.

Contact:
555 North Point Center East , Suite 500
Alpharetta Georgia 30022
678-762-3054 / 800-792-3757
Fax 678-762-3001
Email: jshorr@rwbaird.com


Mitchell Tepper

Mitchell Tepper, Ph.D. M.P.H. is Assistant Project Director, The Center of Excellence for Sexual Health and Research Assistant Professor of Pediatrics, Series II at Morehouse School of Medicine, National Center for Primary Care under the leadership of former US Surgeon General Dr. David Satcher. Dr. Tepper is also the Founder and President of The Sexual Health Network, Inc. and SexualHealth.com. Dr. Tepper is a pioneer in the delivery of sexual health information online and a nationally recognized sexuality educator, researcher, author, and advocate dedicated to ending the silence around issues of sexuality and disability. His years of research at Yale University, Rutgers University, and the University of Pennsylvania have served as the basis for numerous professional, academic, and public presentations, articles, and chapters. Publications include the four volume set, Sexual Health, In J. Kuriansky (Series Ed.) Sex, Love, and Psychology. Westport: Praeger Publishing; Providing Comprehensive Sexual Health Care in Spinal Cord Injury Rehabilitation: Continuing Education and Training for Health Professionals; Lived Experiences that Impede or Facilitate Pleasure and Orgasm in People with Spinal Cord Injury, and Love Bites, a monthly column in New Mobility magazine. Dr. Tepper currently serves on the editorial boards of the Sexuality and Disability and the American Journal of Sexuality Education and on the board of directors of The Women's Sexual Health Foundation. Most recently he has served as Board Member, Chair of Communications Steering Committee, for the American Association of Sexuality Educators, Counselors, and Therapists (AASECT) and was responsible for overseeing Contemporary Sexuality, the monthly membership publication. He has also served as President of the Sexuality Information and Education Council of Connecticut, Chair of Online Services for AASECT, and on the Board of Directors of The Sexuality Information and Education Council of the United States (SIECUS) and the International Society for the Study of Women's Sexual Health. He was a regular guest lecturer at the Yale University School of Medicine over a five year period and maintains an Adjunct Assistant Professor of Physician Assistant Education role at Quinnipiac University. Dr. Tepper has a Master of Public Health from Yale University and a Ph.D. in Human Sexuality Education from the University of Pennsylvania. In addition to academic credentials, Dr. Tepper, who grew up with Crohn's Disease and acquired a spinal cord injury at age 20, brings a lifetime of first-hand experience with chronic conditions and disability to his work. Dr. Tepper has been featured on CNN, Discovery, PBS and in popular press, including The New York Times, Chicago Tribune, USA Today, Good Housekeeping, Cosmopolitan and GQ.
 
Contact:
Morehouse School of Medicine
The National Center for Primary Care
720 Westview Drive SW
Suite 233
Atlanta, Georgia 30310-1495
Ofc: (404) 752-1844
Cell: (203) 257-1895
Fax: (404) 756-5709
Email: mtepper@msm.edu


Yasmin Tyler-Hill, MD, FAAP

Yasmin Tyler-Hill is the eldest of three girls born to Hubert and Jessie Tyler. She was born in rural South Carolina in the local family practioner’s office because her parents refused to use the segregated hospital.

Dr. Tyler-Hill began her education in the segregated school system of South Carolina in the 1960s. She later integrated the “white” schools as one of two students in second grade. Dr. Tyler-Hill excelled academically. However, her parents concerned about the limited expectations and challenges afforded African Americans in this rural area and chose to enroll her in the prestigious Holton-Arms School in Bethesda, Maryland. Dr. Tyler-Hill remembers Holton as the place where she developed much of her philosophy about work ethic and life’s goals. To this day she lives her life by the Holton’s motto; “Inveniam Viam Avet faciam”; “I shall find a way or make one.”

Dr. Tyler-Hill graduated with a degree in Biology with a Letter in the Science of Human Affairs from Princeton University. She received her medical degree from the Medical University of South Carolina and completed her internship and residency at Boston City Hospital, now Boston University Medical Center. This spring Dr. Tyler -Hill was accepted into the Program for Physician Leaders at Academic Medical Centers sponsored by the School of Public Health at Harvard University.

Dr. Tyler-Hill started as a general pediatrician in Chester Pa. She later became Medical Director and Lead Pediatrician at Total Health Care, Baltimore, Md. Dr. Tyler-Hill entered academic medicine when she became Medical Director, Children’s Outpatient Center, and Division Director General Pediatrics at Eastern Virginia Medical School, Norfolk Va. She has been on faculty at Morehouse School of Medicine for 5 years. She currently serves as Lead Physician Dept. of Pediatrics, Division Director General Pediatrics and Course Director for the Pediatric continuity clinic. Dr. Hill’s academic interest is developing and promoting advocacy around children’s issue especially for children who are disadvantaged.

Dr. Tyler-Hill was recently named President-Elect of the medical staff at Children’s Healthcare of Atlanta (CHOA) at Hughes Spalding. She serves on the CHOA Medical Executive Committee. Dr. Tyler-Hill serves on multiple local and regional committees and advisory boards related to children’s health.

She is married for almost 25 years to her college sweetheart Everett L. Hill; she is the mother of 2 children Tyler 20 a sophomore at Yale and Simone 16 a junior at Phillips Academy Andover, Andover, Ma. She resides in Sandy Springs, Ga.

Dr. Hill’s personal philosophy is to have balance within her career and life and always put family first. She works to excel at all she does and believes that our earthly purpose is to make this a better place than we found it. She sums this up in her grandmother’s favorite hymn, “If I can help somebody along the way, then my living has not been in vain.”

Contact:
Morehouse School of Medicine
720 Westview Drive, SW Atlanta,
GA 30310
Ph: 404-756-1332 (ofc)
Email: ytyler-hill@msm.edu


Larry Whirl, LCSW

Larry Whirl is the Director of Support Services at Mary Hall Freedom House and a consultant in the field of behavioral healthcare. He has thirty-seven years in the behavioral health field with experience treating both mental health and substance abuse issues. His expertise is in assisting organizations with management related issues from conflict resolution to program development to policy and procedures establishment.

Prior to coming to arriving at Mary Hall Freedom House in 2005, Mr. Whirl held a number of positions in various organizations. His most recent jobs were with HUGS Recovery Centers as deputy director; and as project manager for Project Synergy, a substance abuse treatment program for ex-offenders. Prior to that, Larry served as Senior Consultant at IMANI Associates. He spent five years at St. Jude’s Recovery Center between 1995 and 2000, serving the last two years as Deputy Director. Before moving to Atlanta, Larry was employed at Comprehensive Addiction Service Systems in Toledo, Ohio as Director of Specialized Programs for five years. Other experience includes eight years as Executive Director of the Court Diagnostic and Treatment Center in Toledo and nine years in private practice as a clinical therapist.

Mr. Whirl is a licensed clinical social worker (LCSW) who is licensed by the State of Georgia. He also has ACSW and DCSW certifications from the National Association of Social Workers. Larry Whirl is also a national CARF surveyor who has surveyed behavioral healthcare organizations for this international certification agency throughout the country for the past thirteen years. He received his MSW degree from the University of Michigan School Of Social Work.

Larry is passionate about being of service to those who experience major challenges daily and who model courage daily through their desire and determination to overcome their issues no matter how large or insurmountable they appear. It is an awareness that ISDD’s mission and purpose is to serve the above population that has drawn Larry to serve this organization. Larry hopes to bring true commitment and dedication to the organization’s cause through his efforts.

Contact:
Mary Hall Freedom House
100 Hannover Park
Atlanta, GA 30350
Ph: 770-642-5500
Email: larrywhirl@hotmail.com


Staff:

Janice Nodvin, Executive Director:

Janice Nodvin is Executive Director of the Institute for the Study of Disadvantage and Disability, where she serves as Clinic Director for an Adult Down Syndrome Program, and Project Coordinator of a multicenter study on the use of Vitamin E on senior adults with Down syndrome. She is the project administrator and educator for the Southeast Pediatric Environmental Health Specialty Unit at Emory University, which is a regional resource on children’s environmental health. Ms. Nodvin is the Project Director for Project GRANDD, a project of the Area Agency for the Aging of the Atlanta Regional Commission. This program provides intensive supports to grandparents who are raising their grandchildren with disabilities. She is involved in numerous committees in Atlanta and the region. Ms. Nodvin has been conference director of several regional and national conferences and assists in development and training. Janice Nodvin has over nine years experience as an educator and has worked extensively as a parent advocate for the past 26 years.

Among her numerous recognitions and awards are the Mary and Max London People Power Award from the Jewish Federation of Greater Atlanta, the Bobby Dodd Award, from Atlanta Alliance on Developmental Disabilities, Woman of Achievement, Atlanta Women’s Jewish Federation, and Women Who Make a Difference in Greater Atlanta, YWCA.

Her volunteer experiences include President of Down Syndrome Association of Atlanta, Chair of the DeKalb Developmental Disability Council, Chair of Developmental Disabilities Department of Marcus Jewish Community Center of Atlanta, Chair of Habima Theater, President of Hadassah, a Vice President of her synagogue and Chair of the Bregman Educational Series.

Ms. Nodvin is proud of helping to create the sports program for children with disabilities at the Marcus Jewish Community Center of Atlanta and a specialty Summer Program of Camp Barney Medintz. She is involved in the development of the Aging Coalition on Aging and Disabilities.

Her inspiration is her son, Evan, age 27 who has Down syndrome, works at a senior adult day care center, acts in Habima Theater, is a member of the Down Syndrome Association of Atlanta, Very Special People and the HAPPY Club of the YMCA. He is accomplished power lifter in the Special Olympics, is a graduate of the Partners in Policymaking Program of the Atlanta Alliance on Developmental Disabilities. He lives in an apartment with a roommate.

Contact:
4818 Coach Lane
Atlanta, Georgia 30338
Ph: 678-595-4854
Fx: 770-396-1011
Emai: jnodvin@aol.com


Advisory Council:

Daniel S. Blumenthal, MD MPH
Morehouse School of Medicine

Robert Bruce, MD
Emory School of Medicine, Chief of Pediatric Orthopeadrics

Lucy Cusick
FOCUS (Families of Children Under Stress)

Frances J. Dunston, MD, MPH
Morehouse School of Medicine

Fozia Eskew
American Academy of Pediatrics, Georgia Chapter

Yvonne Fry-Johnson, MD,
Nat’l. Center for Primary Care, Morehouse School of Medicine

Douglas Greenwell, PhD
GSU, Neighborhood Collaborative

Lucy Hall
Mary Hall Freedom House

Carol Hogue, PhD, MPH
Emory University, Rollins School of Public Health

Elizabeth C. Lense, DDS, MHA
Children’s Healthcare Of Atlanta - Hughes Spalding Children’s Hospital

Paula Rafferty
Lindsey Miller Family Support Project

Delores Rodgers-Smith
U.S. EPA-Region 4

Deidra T. Rondeno, D.D.S.,
Dentistry for the Developmentally Disabled